September 7 · Duchenne Awareness Day

DANCE FOR DREW

Help Drew Defeat Duchenne!
A Virtual Fundraiser · One Boy. One Dance. A Whole Lot of Love.
Dance for Drew — September 7, Duchenne Awareness Day

This September 7th, we're asking friends, family, and strangers everywhere to turn on their favorite song, DANCE for Drew, and SHARE it — while helping us raise awareness of boys like Drew living with and fighting against Duchenne Muscular Dystrophy.

How It Works

1

Dance

Turn on your favorite song and dance for Drew.

2

Share Your Video

Upload your video to our Dance for Drew Tribute Wall so we can fill it with dances for Drew from near and far.

3

Support Drew

Donate to "Dance for Drew" to help us raise money for Drew's personal fight against DMD.

Dance for Drew Gear

$5 from every shirt sold will be donated back
Dance for Drew t-shirts — orange, white, and cream Drew Crew designs
  • Orange + White · Dance for Drew $18
  • White + Orange · Dance for Drew $18
  • Cream + Burnt Orange · Drew Crew (front/back) $20
Sold Out

Share Your Dance

Upload your video to the Dance for Drew Tribute Wall and be part of something amazing — we're filling it with dances for Drew from near and far.

Drew dancing

Support Drew

Every dollar is a gift to help Drew's fight against Duchenne. Donate today and help us raise money for his future. All gifts will go directly to Drew.

Why This Matters

Duchenne Muscular Dystrophy (DMD) is a severe, progressive genetic disorder affecting boys that weakens muscle over time — including the heart and lungs. It's caused by the body's inability to produce the dystrophin protein, which leads to rapid muscle degeneration, weakness, and eventual loss of ambulation and respiratory function.

Drew was diagnosed with Duchenne at 2 years old, and for more than 249 weeks and counting, he's received a weekly infusion of Exondys 51, a treatment designed to help his body produce a partial, functional form of dystrophin and help slow the disease's progression.

Through it all, Drew's faith, his love for God, and the love of his family carry him through this difficult journey with a joy that inspires everyone who meets him.

Thank you for spreading the word and being part of Drew's crew!

Spread the Word

Post your dance, tag us, and use #DanceForDrew #DrewDefeatsDuchenne so we can find you and share it. The more people who join in, the louder Drew's story gets.

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